At EORTC, being a patient-centred non-profit organisation that conducts clinical research in cancer, we are currently considering to involve patient representatives in the activities of our Independent Data Monitoring Committee (IDMC).

The IDMC is an independent body composed of clinical doctors and a statistician whose aim is to evaluate the accumulating data during the course of clinical trials. Their reviews are to verify that the risk/benefit ratio of the study is maintained and to make recommendations on modifications or even early termination of the study.

We believe that patients’ perspective is invaluable. Therefore, we are inviting you to participate in the survey that aims in helping EORTC select the most suitable candidates for this role and develop a tailored training.

Thank you very much.

Sincerely yours,
Iryna Shakhnenko
EORTC Patient relationship manager
 
iryna.shakhnenko@eortc.org

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* 1. Your name and last name

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* 2. Your email address

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* 3. Country of residence

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* 4. Do you represent or are affiliated with any (patient) organisation?

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* 5. Have you had any personal experience of a clinical trial?

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* 6. Have you ever heard about or had some experience in an interim data monitoring in the scope of clinical trials?

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* 7. Would you be interested to follow such course to learn more about the subject?

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* 8.  Would you be interested to become a patient representative of the Independent Data Safety Monitoring Committee of EORTC, after a relevant training and information?

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* 9. I hereby give my permission to process my personal data in the scope of patient involvement by the Independent Data Monitoring Committee of EORTC.

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