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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Follow us on social media!

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Key Solutions to Model Longitudinal Natural History Data with Application in Ataxia Diseases

17 mai 2024

Explore the final installment of our intermediate course series: “Key Solutions to Model…

12 LABOURS OF ECRD – ACTION WITHIN REACH: A RARE DISEASE JOURNEY IN EUROPE

15 mai 2024

Check out the #ECRD2024 comic strip showcasing major milestones from the 1st ECRD…

Save the date: RE(ACT) Congress and IRDiRC Conference 2025

3 mai 2024

Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress…

Upcoming Events

27

Mai

2024

EJP RD Final Conference

We are thrilled to invite you to the Final EJP RD Conference. Scheduled to take place from May 27th to May 28th, 2024 at the Hotel Excelsior Bari, Via G. Petroni, 15, Bari / Puglia,…

  • 09:00 - 14:00 (28 mai 2024)
  • Hybrid (Online and Bari, Italy)

05

Mar

2025

RE(ACT) Congress and IRDiRC Conference 2025

SAVE THE DATE: Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation and the International Rare Diseases Research Consortium (IRDiRC). From…

  • 09:00 - 17:00 (7 mars 2025)
  • Brussels, Belgium
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS