Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
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Latest News
12 LABOURS OF ECRD – ACTION WITHIN REACH: A RARE DISEASE JOURNEY IN EUROPE
Check out the #ECRD2024 comic strip showcasing major milestones from the 1st ECRD…
Save the date: RE(ACT) Congress and IRDiRC Conference 2025
Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress…
Third EJP RD MOOC on “Health Data Ethics & Regulatory Frameworks in Rare Disease Research”
🚀 Our third EJP RD MOOC on “Health Data Ethics & Regulatory Frameworks…
Upcoming Events
17
Mai
2024Key Solutions to Model Longitudinal Natural History Data Application in Ataxia Disease
Description will be updated soon. More information on intermediate courses and Clinical Trials Methodology Watch all the intermediate courses
- 14:00 - 14:00
- Youtube
27
Mai
2024EJP RD Final Conference
We are thrilled to invite you to the Final EJP RD Conference. Scheduled to take place from May 27th to May 28th, 2024 at the Hotel Excelsior Bari, Via G. Petroni, 15, Bari / Puglia,…
- 09:00 - 14:00 (28 mai 2024)
- Hybrid (Online and Bari, Italy)