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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Follow us on social media!

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Empowering Patient Involvement in Research – Watch Johan De Graaf’s Insightful Video

22 avril 2024

https://www.youtube.com/watch?v=sADAC3zsxvA You can now watch the insightful video featuring Johan De Graaf, a…

EJP RD Final Conference: Registration Deadline Extended to May 22nd!

18 avril 2024

 The registration deadline for the Final EJP RD Conference has been extended to…

New course: Early Phase Trial designs in Rare diseases (VIDEO)

5 avril 2024

The video of Alex Sverdlov’s course on “Early Phase Trial designs in Rare…

Upcoming Events

26

Avr

2024

Interim Analysis, Adaptations and Master Protocols

Description will be updated soon. More information on intermediate courses and Clinical Trials Methodology Watch all the intermediate courses

  • 14:00 - 14:00
  • Youtube

03

Mai

2024

Key Solutions to Model Longitudinal Natural History  Data Application in Ataxia Disease

Description will be updated soon. More information on intermediate courses and Clinical Trials Methodology Watch all the intermediate courses

  • 14:00 - 14:00
  • Youtube
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS